Do We Really Have It So Bad!
So this little precious angel on the left is my wonderful niece her name is Katerina! She lives in Massachusetts with her two brothers Steven and Baby Aires (named after my dad)!
Katerina is very very sick she has an illness called Pearson’s Syndrome it is a very rare disorder that only 100 children in the world have. Most Children don’t make it past 10 years of age. You can read more about it by Clicking Here!
Katerina, my sister, and her family have been living with this for 4 years now, and it is a very difficult disease to deal with; Liver failure, diabetes, blood transfusions, fevers, no growth or weight gain, nose bleeds, the list goes on. I admire my sister’s strength and Katerina’s strength too, she is a brave little girl that has endured so much suffering and so much pain. Yet she is so smart and is such a happy little girl it’s incredible to see, and she brings such joy to anyone’s heart.
So I have been in Boston since Wednesday May 26th to help my sister, Katerina, and her family out! I spent Thursday in the hospital with Jo Ann (my sister) and Katerina. Katerina needed a blood transfusion, this allowed me to see first hand what this poor child goes through every 2-3 weeks, and it is absolutely MISERABLE! And yet she was so polite to all the nurses and staff, saying hi and telling them she loved them…truly amazing to see!
We went to Children’s Hospital in Boston, MA so I also saw first hand all the suffering other children are going through. I can’t tell you how heart moving it was. I tried real hard to fight back the tears it was definitely a defining moment for me. At that moment I also realized how lucky I was to have the health I have as we all should. “A man’s wealth is measured by a man’s health!” Ironically this was the quote in a fortune cookie Katerina opened yesterday after we ate chinese food! And it so true and something most of us take for granted. Give thanks for your good health and appreciate it if you have it.
NOW THE GOOD NEWS and the reason I am writing to you about this is, that Baby Aires who is 6 months is a GIFT From GOD. When Baby Aires was born my sister had his umbilical cord saved so she could have it tested for stem cell match. Well months later the results have come back 100% Positive! Truly a miracle. This is so rare for this to happen and we are so thankful, because this means Katerina has a chance for a normal life.
There has been a case of another child with Pearson’s Syndrome having a successful stem cell transplant in Belgium. So after much contemplation and research my sister has decided to go ahead, and try this transplant on Katerina, however there are great risks involved. The greatest of them comes with preparation for the transplant, she has to go through chemotherapy to kill the present cells in her body to make room for the new ones.
Now since she is already very weak there is tremendous risk with this procedure there could be neurological damage, and not to mention death. She will be in a quarantined sterilized room for 100 days with my sister, shut out from the rest of the world. So as you can see this will not be an easy feat. There is still great sacrifice before the great reward…as with anything worth having in this life!
So I am asking you for your prayers during this time. Prayers to give her, my sister, Baby Aires, Steven, and Peter (my brother in law) strength to endure the journey they are about to embark on, and Prayers for a successful transplant, and a happy healthy life for Katerina.
I have come up to Boston to be with Katerina, my sister, Baby Aires, and to help distract Katerina’s brother Steven from the things going on. We have gone to the movies, the beach to fly a kite, bowling, going for rides, and racing radio control cars. Everything a 6 year old boy loves to do, but hasn’t been able to do, because he is worrying about his sister all the time. He hasn’t had time for distractions, because he is wrapped up in everything happening, so I have done my best to keep him distracted for the short time I am here.
My mom is here too we flew up together, and my aunt flew in from Portugal to offer any support and help that Katerina and my sister need. She has been here for months sacrificing so much that it makes me admire her even more than I ever have. It is so great to see my small family pull together, and help as much as we can, hoping and praying for the miracle this little girl deserves.
Thank You for letting me share this story with you and your prayers and comments below are appreciated.
Gratefully,
Anthony Aires
My prayers with you and your family, God bless and hope all works out for the best.
Abe K.
My thoughts and prayers go out to you and your family. This is very promising news about stem cell research though and I hope the outcome is positive!
Thanks for the reminder, BUT not a day goes by that I am not grateful for my health and the life I am blessed to lead. We should all be grateful and take a bit of time each day to acknowledge our gifts.
Anthony,
We will keep your family in our prayers. May our Lord comfort you and give you all the strength you’ll need in the days and months ahead.
Al
My prayers with you and your family, You and your family will put through. Stay positive and things will work out to the best.
Anthony: Bod bless you and your family. He is a kind and loving God and will take care and comfort you. My prayers are with you.
Anthony: God bless you and your family. He is a kind and loving God and will take care and comfort you. My prayers are with you.
I will pray for you and your family starting tonight.
God Bless you, your family and especially little Katerina. There will be sunshine after the rain for your family. The Estrella family will keep you all in our prayers! Thank you for sharing the story.
My prayers go out to you and your family!
All our prayers are with your family. Best wishes and prayers for your niece.
God bless you, Katerina and her family. My thoughts will be with you. Keep us posted.
For sure you and your little niece will be in my prayers. I have been researching stem cell therapy lately for my horse with a torn ligament. I am amazed at the capability and possibility of stem cells. I will be thinking of you often.
My Prayers go to you……Best wishes
I think you said that you where italain.
here is a website for to check for paryers. It has helped us thru hard times.
http://www.padrepiodevotions.org/
Thank you for sharing. My prayers go out to your entire family. We have a very loving God that will see all of you through this. Trust in Him.
God bless Katrina,yourself and your family.
Please do not overlook Prayer and Touch Healing to aid in recovery.
Many things can drain the body of energy, such as depression, pain, stress, grief, anger, radiation, chemotherapy, being bed ridden for long periods of time, etc…
Chemotherapy and Radiation are important and much needed tools for fighting cancer. But they can damage tissues and vital organs and disrupt the energy field of the body, creating a loss of vital energy. Thus new cells that are attempting to grow can have difficultly growing into normal healthy cells.
Keeping the body full of energy reinforces normal, healthy cell replication.
Rev. Tracy L. Parker, as a touch healer in cooperation with medical science, has success regenerating organs and improving the health and quality of life in patients who originally had less than a thirty percent chance of survival.
Tracy works with the energetic field of the body by supplying the energetic vibrations and frequencies needed for the body to:
* replicate cells normally
* reduce some of the adverse effects of chemotherapy
* repair itself of the damage done to the tissues and organs by chemotherapy and radiation
* remove the residual radiation from the energy field
* dissolve the scar tissue created by radiation
* be full of vital energy
To schedule an appointment for Touch Healing with Rev. Tracy Parker click Contact
What is Energy? | The Healing Session | Energy Healing, Touch Healing | Links |Contact | Biography | Classes | School
Thank you, Anthony, for sharing this story with us. Such a beautiful little girl to have so much pain in her young life. My prayers are with little Katerina and you and your whole family during this very trying time. God bless you for taking little Steven on so many adventures to ease the stress off his little shoulders. May God hear all our prayers and bless you all.
May God bless, in give you and your family strengh.
Hey Anthony, thanks for sharing this sad situation in family. I will keep Katerina and your family in my prayers. Just hope that everything works out with her surgery. Keep me posted. And you\’re right, we are blessed that we have good health. God Bless.
Hi Anthony, Thanks for taking time to tell us. May she be healed,
in the Name of Jesus. Our prayers are with you.
Will say prayers,hope it works AND the doctors learn enough to help others too.
God bless you and Katerina and her family, hope for all best for you guys. Our prayer with you and your family
Hi Anthony,
Thanks for sharing your situation with us. Before I read your email, I was feeling sorry for my self over minor things.
I believe that God is using that precious angel to show how he will and can perform miracles.
The word of God says:
\\"If you have the faith as a grain of mustard seed, you can say to this mountain, ____________ be ye remove, and be ye cast into the sea. And If you would not doubt in your heart , you will have what you say.
The word also says in Matthew 18:19
If two of you shall agree on earth as touching anthing that they shall ask, it shall be done for them of my Father which is in heaven
So, there are more than two agreeing with you for Katerina. I am looking forward to your praise report of how well she is doing.
God Bless!!
Hi Anthony,
Thank you for sharing this with us,Yes I will keep your family in my prayers throught the day as I pray.
May GOD give Katerina and all the people in her life the strenght to pass this test that has been placed on all of the family, you will be added to my prayers. keep us posted
I will keep Katerina, your sister and the rest of the family in my thoughts and believe in the out working of good and all things are possible. Keep your heads up and stay strong our prayers are with with you all.
Father GOD,
We thank you that your blessed son JESUS bore the stripes for Katerina ! That through his shed blood, she is healed. We thank you for renewed energy to each family and friend of this precious little child as they provide loving care to her. We thank you for the wisdom you have provided to each medical staff member and caregiver that will come in contact with Katerina. And most of all Father, we thank you that your word tells us there is NOTHING to great for you! Breathe on this child your celestial breath for healing. In the name of JESUS, we thank you for Katerina’s healing-whether by medicine, or majesty, we thank you, and give you the GLORY! Amen !
Anthony, I can hardly wait to hear the praise report ! Please keep us posted.
Anthony,
It is just gut wrenching when children must go through illnesses like this, for the family as well as the child. Please know that she and your family are in my prayers. Thank you for letting all of us know. I will share her story with my prayer partners.
Anthony,
You should set up a paypal button on this post so that those of who can afford it can help out the family!
I have some insight into what you have seen at the hospital. I recently had twins (2 girls) and they were born early and have had to be in the Neonatal ICU for the past few weeks. Although they are healthy and should be home soon I have been able to see other babies that aren’t as fortunate, and the stories I’ve heard from other parents there in the ICU have really changed my perspective on things.
You and baby K are in our prayers.
Chris Daigle
I just want to tell you that you are truly an amazing brother being there for your family at the drop of a hat, this is what family is truly about I am praying for you all and hoping that the stem cell thing is successful. I know I am just some person from your town in Naples but if there is any way I can assist your family in this journey I would be glad to! Your all in my thoughts and prayers, bring that beautiful baby girl home safe and healthy. I am following you and would like to know of any updates!!
Dude, having 2 small boys (7 and 2 years of age), I can just imagine how painful this is for you and your sister. I have not met you and I don’t know you but I pray for you, your sister and Katerina. May she receive God’s healing and strength.
Of course my prayers are with you and your family, especially your neice. I know the feeling since I lost a nephew at 3 mo old to a rare metabolical disorder. I myself had cancer surgery for the 4th time last wednesday and the power of prayer is undeniable. I volunteer in the Hospital every Friday afternoon in Pastoral Care Dept and see weekly the suffering. I live by the philospohy that \"If God brought you to it, God will get you through it.\"
You are doing the best thing you can for your family - be that special Uncle and you will never regret it.
Mom always told me that God never gives us more than we can handle. God bless.
Your family is so in my prayers. I say good luck with the Stem Cell procedure. My X-Husband had to have the Stem-Cell procedure done in Chicago and he is doing fine now.He had to go through the same thing she is going to go through,bless her little heart. My heart goes out to mommy because I know as a Mother how hard that is for her. Just be there for her and let her talk when ever she wants. God Bless all of you.
Many prayers to you and your family from Texas! The power of prayer is the greatest of all. “The acceptance of fear in all our lives is the foundation for real relationship” Fear is a mysterious part of love.
Your Working Realtor,
Rose Riggan
Anthony,
Our prayers and best wishes are with you and your niece, Katerina.
Hal Fishler
Anthony,
We will pray for all your family, specially your nice. Everything will be OK.
Ligia
Thank you for sharing your story. I’m truly sorry to hear about your neice and I will definitely keep your family in my prayers. It’s amazing how well children can handle situations that would break most adults spirits.
Kindest Regards,
Lyndel
She is a follower of the anointed one.Our prayers for her are being manifested.When she is our age,she will give others hope that face difficult times.She is a miracle child.
Hi, Anthony. I don’t know if you remember me, but I wrote to you after I saw Chris and Nathan’s short sale presentation on 3/18, and you quoted me in a follow up video and drawing on 3/19. I was really moved by your story about your niece. Please set up a fund at a local bank in Boston that people can contribute to for her travel and medical expenses and support. Prayers are a given, but if your sister needs financial help with this undertaking, I’m sure there are hundreds (if not thousands) of people whose lives you have influenced for good who would be able to send something to make this burden a little easier.
In faith–
Jeri
Hi Anthony, stay strong and god bless you and your family.
My problems now seem small now.
Dear Anthony,
It is so sad that a little, beautiful child is suffering so much. Thankfully, she has a beautiful family who cares about her so much! God bless you all, my prayers are with all of you.
My prayers go out to the family, its great that the family bonds together,we really have tp pray for each other, THERE ARE SO MANY TO PRAY FOR. KEEP THE FAITH,REMEMBER TO GIVE IT TO THE LORD AND LEAVE IT THERE.
JB
Anthony,
Psalms 115:12
The Lord is mindful of us;
He will bless us;
He will bless the house of Israel;
He will bless the house of Aaron;
He will bless those that fear the lord,
Both small and great.
\"O theos panda mazi me oli ti oikogenia.\" Katerina always be in my prays.
AMT
Anthony:
I am so sorry to hear about your niece. I can just imagine what you and your family are going thru. Rest assured, she is with God know and is wholesome and healthy. She will always be yours and your families angel!
Again, my condolences.
Michele
I was so sorry to hear about your neice. My prayers are with you and your family. It just puts things in perspective, when I am feeling down, that there is someone out there, going through something a lot worse than I am. God bless you for being a great and supportive uncle and brother.
So sorry to hear of your loss, I have you all in my prayers.
Jon
My prayers are with you and your family. May DIOS give your sister and her kids and husband the strenght and resignation.
My Prayers Are With You And Your Family.
Sorry for your loss Anthony.
My prayers with you and your family.
kriss
Anthony Im having the hardest time of thinking of words to say because life shouldnt end this way your niece should be able to grow up and play till dark and enjoy all her Christmas\’s plus all the girls sleep overs.
Im very sad for your loss I will pray for her all times.I feel very lucky to have a life that I have and your right some times we do take life for granted especially when this happens to a little child like her after I write this in about 1 hour Im giving blood to red cross Im going to donate in honor of you niece. May god bless you and your family a friend for life Jim Crowley Livonia Michigan
Anthony,
We are so sorry for your loss. Our payers go to you and the Nello\’s family.
Lucy
Calif.
So sorry to hear of such a great loss. My prayers are with you and your family. Nothing catches God by surprise. He will be there to comfort you and your family. Look to Him for your inter-peace and comfort. Remember John 14:. Also Even in the bleakest time, Christians have the brightest hope. You will see her and again.. a whole body in spirit
I just wanted to send my condolences to you and your family at this time. I don’t know of any words any one can say to you and your family to help to ease the pain of your loss, but God gave us memories so that we can remember the good times we shared with our loved one. So, please hold on to God’s word and remember those good times with your niece.
My deepest condolences to you and your family. Sorry for your loss. My prayers with You and Your family.
Teresa
Nevada
Anthony,
I will keep your family in our prayers. May our Lord comfort you and your family and give you all the strength you’ll need in the days and months ahead.just ask god for gidenees and you and your family will see the strength off god
Albert
Hi Anthony,
I certainly can feel your pain as I ma mourning the loss of my cousin who passed away this past Friday.I am heartbroken for your loss and there are unfortunately no words that can bring any comfort or relief to your sorrow. While this beautiful little angel is on her way to continue her journey in heaven, I sure will keep you lifted in my prayers and may God\’s blessings always be upon you and your family.
Warm regards and with my dearest sympathy,
Jean Rimpel
I\’m very sorry for your loss. I know what it feels like to loose someone you love dearly! My heart and prayers go out to you and your sister\’s family. May the Lord Jesus Christ, bring peace to you swiftly. Take care. Pleae let me know if there is anything I can do.
Mario
My prayers are with you. It is so hard to see such a little one that is suffering. She is with our LORD know and may your family be blessed.
With prayer and sublication,
Dr. Gary J. MacDiarmid Sr.
Anthony,
I am so very sorry to hear about your precious niece. It is so hard for those of us left behind, but we all know that she is no longer in pain and is living in heaven where we will meet again.